Unseen Light: A Family’s Story of Living with Stargardt Disease — Memoir · Parenting · Vision Loss

How do you hold on to hope when the world begins to blur?


When Rohan, a bright five-year-old, starts struggling with reading, his parents think it’s just a phase. Then comes the diagnosis: Stargardt disease — a rare genetic condition that slowly steals central vision.


Unseen Light follows one family’s honest, unsparing journey through fear, denial, quiet courage, and unexpected joy: the father who hides his despair so the family can keep going; the mother who learns to fight for her child’s future; the small moments of triumph that do not make the headlines but change lives.


This book is for parents who refuse to give up, for caregivers who need a hand to hold, and for anyone who wants to learn what resilience looks like when sight is lost but love remains.


Includes resources & support notes for families facing vision impairment.